There are currently 3.4 million people living with epilepsy in the United States (1.2% of the population) and it is the second leading cause of death from a neurological condition (CDC). We can change this.
Since 2008, funding by the National Institutes of Health (NIH) for epilepsy increased by only 5 percent, which is far less than for other neurological diseases. While the NIH spends more than $30 billion on medical research every year, less than half of a percent goes to epilepsy. This is a problem that the Cameron Boyce Foundation hopes to rectify.
The Now What campaign empowers people newly diagnosed with epilepsy to take control of their health and figure out, Now What? The campaign will provide fact sheets, emotional support, video content, information about level 4 centers, directories and more.
A one-stop shop for everything you need to know about what happens when you or a loved one is diagnosed with epilepsy. This is a community intended to share information to make living with epilepsy easier for everyone.
Epilepsy is sorely underfunded. 3.4 million Americans live with active epilepsy including 470,000 children and teenagers. Thirty to forty percent of people with epilepsy live with uncontrolled seizures despite available treatments. The CDC estimates that epilepsy imposes an annual economic burden of $19.4 billion on the country. Unfortunately U.S. federal funding in epilepsy is modest and significantly lags behind other common neurological conditions.
The Cameron Boyce Foundation partners with CURE epilepsy to fund the Cameron Boyce Foundation taking flight award which funds novel research around controlling seizures and curing SUDEP.